Genetic Hearing Loss Educational Resources

Welcome to the Genetic Hearing Loss Educational Resources page, a comprehensive guide designed to support clinicians, trainees, and families navigating the genetic evaluation process. Here you’ll find tools for pre- and post-test counseling, help interpreting and communicating genetic testing results, and quick reference guides to support informed, accurate discussions. We also provide curated counseling resources and clear, family-friendly educational materials to help ensure that every family receives compassionate, understandable, and evidence-based information throughout their diagnostic journey. 

This resource page was developed in partnership with Eli Lilly and Company.

Testing, Interpreting, and Communicating Tools

View video tools for pre- and post-test counseling, help interpreting and communicating genetic testing results, and quick reference guides to support informed, accurate discussions on our Genetic Hearing Loss Video Showcase.

Genetic Hearing Loss Video Showcase

• Quick Reference Guide: Genetic Counseling Training Guide for Genetic Hearing Loss
• One-page quick reference guide for hearing healthcare providers who are conducting pre-test and post-test genetic counseling. This guide covers critical talking points and a high-level overview of positive, negative, and uncertain test results. QR codes linking to short videos on pre-test genetic counseling, interpreting genetic test reports, and post-test counseling are included.
• Comprehensive Guide: Genetic Counseling Training Guide for Genetic Hearing Loss
• Comprehensive guide for hearing healthcare providers to provide a detailed description of the genetic counseling process and the key components of a typical genetic counseling session.
• AudiologyOnline Partner Page: Eli Lilly and Company
• Hearing First Courses: Hearing First
  
  • Genetics and Hearing Loss: Fundamentals of Genetics (Intermediate)
  • Genetics and Hearing Loss: Genetics and Auditory Function in Children (Advanced)
• Hands & Voices Resources
• Keys for Discussing Genetic Testing with Families: A Guide for Professionals

Sponsored (no-charge) Genetic Testing and Counseling Resources

• Resonate^® Program for Sensorineural Hearing Loss and Auditory Neuropathy (sponsored by Eli Lilly and Company)

• How to order: No-Charge Genetic Testing and Counseling Program for Sensorineural Hearing Loss | Prevention Genetics
• To learn more: AkouosResonate.com
• Resonate^® No-charge Genetic Testing and Counseling Program Provider Brochure
• Provides an overview of the Resonate^® program for healthcare providers, including eligibility criteria, ordering process, and links to the ordering site.
• Resonate^® No-charge Genetic Testing and Counseling Program Patient Brochure
• Provides an overview of the Resonate^® program for patients and families, including eligibility criteria and how the program works.

 Information for Patients/Families

• Hands & Voices: Genetic Testing Resources
• A Parent’s Guide to Exploring Genetic Testing: Making Informed Family Decisions
  
• Questions to ask your Genetics Team
  

Please note, we are sharing this information as a resource for our members. This does not constitute an endorsement. Our goal is to help clinicians stay informed and make the best decisions for their patients.